Late-2010
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Left cervical lymph node is enlarged to approximately 2cm x 2cm. It
is located just below the corner of my jaw about an inch below my ear. My left
supraclavicular lymph node is also slightly enlarged. I believe them to be
associated with a tooth infection that I had at the time. Both seem to
resolve over a few months time. However, as I know now, the supraclavicular
may have still been slightly larger than 1cm x 1cm.
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11/1/11
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Dental exam for mild tooth pain in lower left jaw shows a severe
infection under the two teeth that will be extracted.
Note: I believe that both the same two lymph nodes (cervical and
supraclavicular) were enlarged at this point.
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1/5/12
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Dental surgery appointment followed by a prescription of AMOXICILLIN
500 MG CAPSULE, qty: 21
Antibiotics do not cause the cervical lymph node to resolve (go back to normal size).
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1/16/12
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Follow-up for suture removal. Surgical procedure is successful and
the gums are healing well.
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3/12/12
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Routine yearly physical examination. Recommendation is to get
cervical lymph node checked by personal physician if not resolved within a
month. Complete blood count and metabolic panel are normal.
|
6/14/12
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Consultation with my new general practitioner (GP) to discuss my
enlarged lymph node. Left supraclavicular lymph node is found to be slightly enlarged.
Doctor requests another CBC and also prescribes antibiotics to see if
the lymph node fully resolves.
Prescription: AMOX TR-K CLV 875-125 MG TAB, (Generic Equivalent for
AUGMENTIN 875-125 TABLET ), qty: 28.
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6/29/12
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Follow-up call with GP. Lymph node is not resolved after completing
the antibiotics. Next step is a fine needle aspiration/biopsy.
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7/9/12
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Fine needle aspiration/biopsy performed followed by a biopsy
pathology. Initial slide stain during biopsy looks good, normal and healthy
lymphocytes.
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7/12/12
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Fine needle biopsy results returned to GP. Results are somewhat
inconclusive and show the presence of “rare large atypical lymphoid cells,
some of which have a binucleate appearance.” GP then refers me to a surgeon
for an excisional biopsy consultation.
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7/15/12
|
In preparation for a follow-up dental procedure I am prescribed (1)
CHLORHEXIDINE 0.12% RINSE, (Generic Equivalent for PERIDEX 0.12% liquid) and (2)
AMOXICILLIN 500 MG CAPSULE, qty: 21
Neither has an effect on reducing the size of the enlarged lymph
nodes.
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7/31/12
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Referral appointment to oncological surgeon in the same hospital
network as GP. This is to get a second opinion for an excisional biopsy.
Doctor initially recommends a fine needle biopsy. When I tell him that I’ve
just had one he then recommends the excisional biopsy of an alternate lymph
node, possibly under right armpit. He believes the existing state of the
enlarged cervical lymph node may produce a confusing result. Not a very positive meeting for me. Time for
a real second opinion.
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Early August 2012
|
Time for an extended vacation and time for some real research for a
recognized lymphoma specialist.
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8/29/12
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Met with Dr. Eric J. Seifter today for approximately an hour. This
included an initial discussion of the package I sent via email. It also
included an exam and follow-up consult on the path forward. Surgery appointment was scheduled as well
as the required pre-op tests including two blood tests and an EKG. Results of
the needle biopsy indicate we need to perform an excisional biopsy (surgery
to remove the enlarged lymph node).
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9/12/12
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Had a 30-minute pre-op consultation with Dr. Wayne Koch at the JHU
Outpatient Center to look at candidate lymph nodes and explain the surgical
procedure. The decision is to perform an excisional biopsy on the enlarged,
left cervical lymph node.
|
9/13/12
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Excisional biopsy surgery that included about 2 hours of pre-op, a
30-minute procedure, and two hours of post-op. I was awake for the surgery
and lightly sedated. Saw the primary offending lymph node once it was removed
and it didn’t look like much – a small (1-inch long) pinkish/red fleshy mass.
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9/20/12
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Pathology results returned to Dr. Koch.
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9/21/12
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Hodgkin’s Lymphoma diagnosis is confirmed by Dr. Seifter. Preferred treatment is ABVD, which is the
following 4 drugs: Adriamycin, Bleomycin, Vinbalstine, and Dacarbazine. Three
additional tests are immediately scheduled for the following week: (1) CT/PET
scan for staging HL , (2) pulmonary baseline (lung function test since Bleomycin
can affect lung tissue), and (3) an echocardiogram for a heart baseline – a heart
scan with ultrasound (since Adriamycin can affect the heart).
(link to results)
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9/24/12
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PET/CT scan at American Radiology.
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9/25/12
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PET/CT Results. Dr. Seifter called to confirm Stage 3A HL.
(link to page)
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9/27/12
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Echocardiogram at JHU Greenspring Facility.
|
9/27/12
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Chemotherapy consultation and question/answer session with Dr.
Seifter. Both Jen and I went and asked all of the questions we’ve been
gathering from reading, family and friends. We also met part of the chemotherapy
nursing team – Anna Recchio and her son Chris.
|
9/27 12
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Flu shot – I got one at the chemotherapy facility since it’s that
time of the year and I can get it out of the way now.
|
9/28/12
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Pulmonary function test at the Pulmonary Lab in the JHU Outpatient
Center.
|
10/9/12
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Start Allopurinol (300mg tablet). One tablet per day for 14 days.
|
10/12/12
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Chemotherapy #1 at 9:00am. ABVD intravenous drip. Dacarbazine is the
first and takes about an hour. The other three (pushed through by the nurse
over the next 60 minutes.
|
10/23/12
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CBC at Park Medical Associates prior to Chemotherapy #2 to see how
I’m responding.
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10/25/12
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Chemotherapy #2 at 10:00am.
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11/7/12
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PFT #2 at JHU Outpatient Center.
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11/9/12
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Chemotherapy #3 at 10:00am.
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11/26/12
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Chemotherapy #4 at 10:30am.
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12/5/12
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PET/CT #2 at American Radiology.
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12/6/12
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PFT #3 at JHU Outpatient Center.
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12/7/12
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Chemotherapy #5 at 10:00am.
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12/21/12
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Chemotherapy #6 at 10:00am.
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12/27/12
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PFT #4 at JHU Outpatient Center.
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1/4/13
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Chemotherapy #7 at 10:00am.
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1/16/13
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PFT #5 at JHU Outpatient Center.
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1/18/13
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Chemotherapy #8 at 9:00am.
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2/1/13
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Chemotherapy #9 at 9:00am.
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2/14/13
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PFT #6 at JHU Outpatient Center.
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2/15/13
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Chemotherapy #10 at 9:00am.
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3/1/13
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Chemotherapy #11 at 9:00am.
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3/15/13
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Chemotherapy #12 at 9:00am (hopefully the last!).
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4/26/13
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PET/CT #2 at American Radiology.
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6/21/13
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First post-chemo check-up with Dr. Seifter (every 3 months for year
#1)
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10/4/13
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Second post-chemo check-up with Dr. Seifter (every 3 months for year
#1)
|
1/17/14
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Third post-chemo check-up with Dr. Seifter (every 3 months for year
#1)
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4/25/14
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Fourth post-chemo check-up with Dr. Seifter (every 3 months for year
#1)
|
9/15/14
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Fifth post-chemo check-up with Dr. Seifter (every 4 months for year
#2)
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1/16/14
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Sixth post-chemo check-up with Dr. Seifter (every 4 months for year
#2)
|
On Friday, September 21, 2012 at 9:45am I was diagnosed with “Classic” Hodgkin's Lymphoma. Dr. Eric J. Seifter, my oncologist, called me at my office and told me the news directly, just as I wanted. As I would find out on the following Tuesday after a PET/CT scan, I have Stage 3A, mixed cellularity subtype HL. The main purpose of this blog is to share information with my family and friends. I have made this a public blog so that others might learn something about HL with a little more ease.
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1 comment:
Hey Mike Bracken! I remember how tough and strong you were at ERHS, so go ahead and kick this lymphoma right in the A--! You and your family are in my prayers. - Jonny and Diane (Powers) Cohen.
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